summer wrote:Are you doing OK on the Humara?The MTX works for me, but on two occaisons I have had to come off it, due to ill effects on my liver,
Yes, I'm doing great on the Humira
- but I take it along with MTX, but I take that in pill form. But that does remind me, I have to get my blood work done for that, I'm a little overdue . . .
summer wrote:at the moment I am off it due to a rash which is thought to be caused by the MTX, Ive been off it two weeks now, and already Im in pain, and stiffening up, all a real downer, I also have immense fatigue , do you get this ?,
Yikes, hope you are able to start your treatment again soon. And yes! When I have flare-ups, I also have to fight the incredible fatigue, its SO bad! Haven't had to fight it since last summer which was really hard so I'm grateful for that.
summer wrote:so shaming, and fills me with guilt, but mainly anger at the whole disease.I still find it hard to come to terms with the diagnosis.
How long ago were you diagnosed? Don't feel quilt or shame, and don't compare yourself to healthy people! We have to take our ups and our downs so don't let them get to you
highonlife wrote:after having been severely depressed, extremly affected by the ra (to the point of not beeing able to wash my own hair most days/weeks, not being able to live alone) after a year of testing drugs of different kinds and living at my moms house, finally it may seem that i can use and have effect of embrel.. so the coctail of drugs is finally working and for the first time in ca. one year i can reach and strech both hands over head with only a slight discomfort!! am so afraid to enjoy this because i have only been using embrel for 3 weeks, 4 on monday. but oh it is so good. feels like hope of some kind..
Hello Highonlife! Its so good to see you back here
I'm so sorry about the hard year, but I'm SO glad to hear embrel is working for you to some degree! When I was first diagnosed, I was struggling to wash my hair because my shoulders and hands were so bad. Cheer up though, sounds like you are on a decent regiment now and things should be getting better. Hope to hear from you more here!